Our Resources
You are not alone. Aside from family, friends, and your doctor(s), a support group like ours can provide essential support in many areas:

• Education
• Acceptance
• Sharing
• Socialization
• Motivation
• Goal-setting
• Action
• Empowerment
• Hope

In addition, there are many reputable national resources. Below, listed alphabetically, are some of the best-known, science-based organizations. The information is taken directly from their websites and include a description of their mission and focus along with a link to their websites.

Some, like the Davis Phinney Foundation, focus primarily on education and support for those with Parkinson’s and their families. Others, like the Michael J. Fox Foundation, focus primarily on research. The third group, like the Parkinson’s Foundation, which we support with our annual “Walk Over Water,” does important work on both research and education, the latter with symposiums (online and in person), blogs, articles, Help Lines, etc.

www.apdaparkinson.org 1-800-223-2732
P.O. Box 61420 Staten Island, NY 10306


Every day, we provide the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest.

“Founded in 1961, APDA has raised and invested more than $252 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD and ultimately put an end to this disease.”

www.dpf.org 1-866-358-0285
P.O. Box 270948 Louisville, CO 80027


Since 2004, the Davis Phinney Foundation has brought to life some of the most important programs, research, content, and events for those affected by Parkinson’s. Our community includes people living with Parkinson’s, Parkinson’s care partners, families and friends of those living with Parkinson’s, physicians, and Parkinson’s allied health professionals.


We all want a cure for Parkinson’s. However, until that happens, we know that people are going to live a very long time with it; therefore, the most important work we can do is to help them live well TODAY. We do this by providing education, tools, resources, and inspiration that touch on every aspect of life: physical, emotional, intellectual, social, and financial.

Wondering how we got our name? Davis Phinney is an Olympic Bronze medalist and Tour de France stage winner who has celebrated the most victories of any cyclist in American history. From the late 1970s until his retirement from professional cycling in 1993, Davis achieved more wins—328 victories in all—than any other U.S. cyclist.

In 2000, after years of feeling not quite right, and an almost endless round of tests, Davis was diagnosed with young onset Parkinson’s disease (YOPD). Finally, the years of battling constant fatigue, the mental fogginess, the muscle cramping, and bouts of sudden numbing weakness had a name.

Realizing early on that he could take action to feel healthy and strong despite his Parkinson’s, Davis started the Davis Phinney Foundation for Parkinson’s to promote and fund innovative research that seeks to improve the quality of life of those living with Parkinson’s. Since then, the Foundation has expanded far beyond research to become a leading source for education and resources to help people with Parkinson’s take action to live well today. Annually, the Foundation reaches more than 1.5 million individuals and families through online resources, events, community engagement, and more.

Today, Davis lives in Boulder, Colorado, with his wife and fellow Olympian, Connie Carpenter-Phinney. They have two grown children Taylor and Kelsey, who are involved with the organization in a variety of ways. Davis continues to celebrate the daily victories in his life, inspire others by living well, and share his message of optimism with those who need it most.

Note: This foundation has an excellent FREE reference book on all aspects of Parkinson’s, “Every Victory Counts.” There is also one for caregivers.

www.michaeljfox.org 1-212-509-0995
The Michael J. Fox Foundation for Parkinson’s Research
Grand Central Station P.O. Box 4777 New York, NY 10163-4777

Our Mission

Our Promise

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today.

Our Agenda

The Michael J. Fox Foundation’s (MJFF) agenda is focused on building improved knowledge about the lived experience of Parkinson’s disease, finding an objective test for Parkinson’s, engaging patients in research and supporting the development of new treatments and a cure.

Note: MJFF also engages in important national legislation that supports funding for research and other issues affecting access to insurance and other types of care for those with Parkinson’s.

www.pmdalliance.org 1-800-256-0966
2030 W Baseline Rd. #182-6207 Phoenix, AZ 85041

Our Mission

We’re the Parkinson & Movement Disorder Alliance, “PMD Alliance” for short — an independent, national nonprofit dedicated to providing opportunities for people to learn, live more fully and spark meaningful connections around them…

Our Promise to You

During these uncertain times, we want to remind you of our promise: you will not walk this journey alone. PMD Alliance’s commitment to providing education, resources, connection, and support to our community remains as steady as ever.

Parkinson disease and movement disorders do not discriminate and neither does PMD Alliance. We welcome each person as they are, recognizing that we share one fundamental truth – we are all trying to navigate and live our very best lives in spite of the disease.

We embrace the diversity and unique experiences of each person, welcoming them and the richness of their histories and stories they share. At all times PMD Alliance will create an environment that embraces these truths:

• People are more than their disease.
• Transparency is a cornerstone of trust.
• Partnership offers collective success.
• Sustainability is the essence of organizational health.
• Stretching and risk-taking are imperatives

www.parkinson.org 1-800-223-473-4636 (Helpline)
200 SE 1st Street, Ste. 800 Miami FL 33131 & 1359 Broadway, Ste. 1509 NY, NY 10018

Vision & Mission

The Parkinson’s Foundation makes life better for people with Parkinson’s disease (PD) by improving care and advancing research toward a cure.
In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.


(PDF), both established in 1957, with offices in New York and Miami. In June 2017, the Foundation marked the 200th anniversary of the publication of, “An Essay on the Shaking Palsy,” by James Parkinson and the 60th anniversary of the Parkinson’s Foundation.

Our Promise

The challenges of living with Parkinson’s disease, improving care and finding a cure can seem overwhelming. No individual or group can do it

We are the Parkinson’s Foundation. A community. An alliance. A movement. Where people living with Parkinson’s, families, caregivers, scientists, advocates, donors and volunteers join forces to improve lives and advance toward a cure.
For over half a century, we’ve made tangible progress on all fronts, from the􀀀largest clinical study of Parkinson’s, which has significantly improved care, to breakthrough treatments. Today, we continue to:

• Provide life-changing support to people living with Parkinson’s and their caregivers
• Fund game-changing research on treatment and care
• Convene the best minds from every corner of the global Parkinson’s community to find new approaches that enhance care and move us closer to a cure.

Everything we do is based on experience and informed by facts. The people we serve deserve nothing less than the highest level of support based on validated research and deep encouragement grounded in reality. Our donors and volunteers need to know that we are 100% accountable. This is why we focus on verifiable outcomes, not vague promises…